This was probably the most unusual way we have ever spent Valentines Day. Mary Beth and I were at the Wisconsin State Capitol to meet with our Senator and Representative to talk about bill related to Epilepsy. The picture was taken on the second floor rotunda facing the East Gallery. Mary Beth is on the Board of Directors for the Western Wisconsin Epilepsy Foundation. She also had epilepsy until she was in her 20’s and our oldest son, Eric, also has epilepsy.
The bill that we were there to support would require pharmacists to notify the doctor and the patient when the pharmacy changes manufacturer of a particular drug. There are lots of manufacturers of the generic form of any particular drug. By law, the generic can be anywhere from 80% to 125% of the “blood absorption” rate of the original brand name of the drug. This is not a big deal for most drugs. If the pharmacy changes the manufacturer of my cholesterol pill it won’t cause me to have a heart attack! However, drugs that control seizures have very narrow effective ranges. Changing manufacturers without even your doctor knowing can and HAS caused seizures. If the doctor knew about the change and knew your specific history a test would probably be ordered to check your levels on the different pill manufacturer.
You might think this is simple common sense - right? It passed in the Senate on a voice vote. Then it went to the Assembly. The leadership of both parties may be pretty smart about politics, big business and special interest groups. But when it comes to doing something simple and right for us common folks - forget about it! First they have to speed dial one of their lobbyists to see what they should do. In our case it is opposed by the pharmacist lobby. It’s too much work for them - that’s not what they say - but that is their only real objection. The rest gets obscured with a flood fancy terminology and numbers and science and absorption rates and on and on and on.
Mary Beth and I are happy to report that both our Senator - Kathleen Vinehout and our Representative - Jeff Smith are in favor of this bill. This was also the first time we have ever had an appointment with a legislator to discuss a bill. It is an amazing thing that more people should take the time do. If you live in Wisconsin we would really appreciate it if you would email or write your representive in Madson to please Support Senate Bill 71. It is real easy to find out who your representitive is. Just go to www.Wisconsin.gov or google “who is my wisconsin state representative”. When you send your letter or email please let them know where you live. It makes a big difference to them to know that you are an individual with an opinion and not part of an organized effort to flood them with email. Also, if you email - please copy Representative Vukmir at Rep.vukmir@legis.wisconsin.gov - she is one of the leaders that is against the bill. Thanks a lot for helping!
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